OK guys, I know I haven't posted as much as I would have liked over Awareness Month. I have been doing some work to increases the general public's awareness. Plus of course I've had my really bad days where I couldn't even walk down the stairs the pain was so bad. It got me thinking that I'd love to hear some of your stories of how you've coped with your Endo, when you got diagnosed and what if any treatments you have found useful or have helped you along the way.
If you have something you'd like to share, either leave a comment or if you have a longer piece you can get in touch with me through the blog and we can work putting your stories up for all to read. Highlighting them if you will.
I find great support not only from my Family but also from all of my Endo Sisters and would love to hear from some of you.
One thing I will say is this; It's fine to express your opinion about your experiences but as we all know ignorance of this disease is many people's downfall. So if there are any negative comments on people's stories, they will be removed. I will moderate as much as I can so finger's crossed nothing horrible gets said to anyone (I've had experience with this through support groups, forums etc. People thinking that they're worse than you, you can't be in pain only to find out that they are not a sufferer at all, or that they are being hateful and aggressive.) If anyone encounters any of these issues on this page then let me know immediately please.
We have to put up with a lot of judgement because as I've said before if people could see what was on the inside, actually see the Endo there would be a lot more questions asked as it's visible to them. It's difficult dealing with an "invisible disease" without feeling you don't have a safe enough place to talk it out.
Let me know if this is something of interest. If not I shall have another post up soon.
Stay strong.
