Thursday, March 15, 2018

Continuing on with the Endo Photo Challenge for 2018

I haven't been able to update the blog because I've been going through a horrible flare up with my Endo/Adeno and other chronic issues. I've just about managed not to fall too far behind by updating my Instagram (thank the gods for smartphones and apps)

So here are a couple of recent topics we've covered with regard to Endometriosis Awareness.

Day 11 was about the myths we've all heard about Endo.
#theendophotochallenge2018

 Myths that I've come across where mainly from Doctors in my case, about Endometriosis.

Most commonly I've been told,

Pregnancy will cure you, surgery will cure you, a hysterectomy will cure you.

Side bar; There is no cure for Endometriosis

While some Women's symptoms ease off whilst pregnant it doesn't mean they're cured, same goes for surgery. You might feel relief for a time but then find your symptoms returning.

Finally a hysterectomy does not cure Endo. This has to be one of the biggest myths floating around.

Do your own research and get second opinions if necessary. Don't drastically change your life by bringing a child into the world purely for the sake of chasing a cure.
Don't have a hysterectomy or radical surgery if you're trying to preserve your fertility, if the Endo is outside the womb because you won't be cured.
You MAY find relief but you MAY NOT.

It's a gamble that we shouldn't have to take with our bodies.




I also have psoriasis, bruising for no reason or extremely easily bruised which I've been told is from Anaemia. I have been a chronic insomniac since around age 20, so 12 years with that and believe me I've tried and continue to try everything to crack it, from alternative remedies like acupuncture, reflexology, herbs to prescription medication. Whoever coined the term "painsomnia" had it totally right.  I also suffer from shoulder and neck pain. 






Day 14 & 15 of #theendophotochallenge2018

Positive side to Endo & what Endo has taught me. 
The positive side;
I would have to go with making me stronger as a person. I have learned and listened to my body all along this road. But it took a while for me to actually question my Dr. 's to ask for second opinions and not take their sometimes dismissive way of speaking to me.

I've left my home country Ireland 🇮🇪 and gone to 🇫🇷 to have cutting edge surgery to try reduce my pain and symptoms and I flew home solo after only a few days recovery. That was the strongest thing regarding surgery I've ever had to do alone but I got through it.

I'll keep fighting for myself and spreading as much awareness about this awful invisible illness as I can.

What Endo taught me;

Being diagnosed also taught me who my true friends where as a lot walked away because I would be too weak or have to cancel plans and that again opened my eyes and has made me who I am today.

I love the ones who stayed, I love my Mum so much for being there the whole time, fighting for me since age 11 because she had gone through it and knew the symptoms. She was told that she was wishing it on me, that I just had heavy periods and very bad pain, even when I would miss school every month because of my period and collapse our G.P still wouldn't listen or give a referral. She daughter hard until we got that referral and through a diagnostic Laparoscopy it was finally discovered that I had severe Stage IV Endometriosis. It took us 7 years to get that diagnosis. 7 years where it went untreated. That woman will forever be my hero. She stood up for me at a time I couldn't and has been with me through every treatment and surgery bar one.

She'll just say that's a Mum's job but she deserves the recognition for it considering she has chronic issues of her own she deals with every single day. 

So listen to your body, keep a journal and don't ever be afraid to speak up for yourself and ask questions, do research. It's your body. You do have a say. 

(Went slightly off topic there 🙃)  

For more follow me Instagram and Facebook @isthereanendtoendo and on Instagram @lifeofandiealessandra where I'm posting my challenge photos.




Tuesday, March 6, 2018

Day 6 of Endometriosis Awareness Month

Day 6 of #theendophotochallenge2018


Years with Endo.

I've been diagnosed through surgery with Stage IV Endometriosis for almost 15 years now.

However, I've been suffering for 23 years with strong symptoms and have been dismissed along the way, at one point the professionals had me believing that the pain was all "in my head".



Even after I was diagnosed people still didn't believe how badly I was suffering bar one and she knows who she is. She has stuck beside me through every treatment decision, fought hard for Doctors to take me seriously and ultimately get me my diagnosis.

She has been through every up and down with me, talking surgical and treatment options over with me time and time again to make sure that I could live with my choices as over the years the sacrifices have just gotten bigger and not necessarily for the best. But up or down, stormy or calm she's always been there when others have scoffed or simply walked away because my diagnosis was just "too much for them to handle".

You need a support system with this disease, wherever you can find it, but you need one nonetheless.

Stay positive and I'll see you tomorrow for the next challenge.

Andie

Monday, March 5, 2018

Day 5 of Endometriosis Awareness



Day 5 of #theendophotochallenge2018 on Instagram



Listed 👆 are my medications/treatments to date (that I can recall) for the pat 18 years.

Let me tell you the struggle is all to real when you have an invisible illness.

People just don't see past you looking like a regular walking/talking being. They don't see the scars, the pain behind the masks we wear to try look "normal". No one sees the sacrifices we make along the way or allow us to grieve for the girls and women we used to be before Endo.

Well no more 🎭. This is our chance to spread awareness and shout/scream, let our 176 million voices be heard.

#endometriosisawareness #endoflare#endopain #fightlikeagirl #endoaware#ovulation #ovarypain #bowelresection#surgeries #painlevelhigh#1outof10doesntworkforme #1in10#176millionwomen #weneedacure#spoonie #chronicpain #chronicillness#invisibleillness #stageivendo #staystrong#positivethinking #mentalhealth#positivevibes #powerofpositivity #healing#respect #bekind #friendship

Day 4 of Endometriosis Awareness

Day 4 #theendophotochallenge2018 on Instagram
Diagnosis;

After seven years of suffering heavy periods, fainting spells and numerous days off from school I was finally diagnosed at age 18 through surgery, laporscopacally, with #stageivendo.

Even though I have a very strong family history of Endometriosis my G.P kept dismissing even the idea of me having it.

I started showing symptoms at age 11. Don't let this happen to your daughter /sister/significant other/family members.

#endometriosisawareness #endoaware#1in10 #176millionwomen #weneedacure#spoonie #chronicpain #chronicillness#invisibleillness #endopain#endosymptoms #endodiagnosis
#chroniclife #endolife