Family Support

I have mentioned before in my posts how important I feel it is to have support from your family while going through the mind blowing, body ripping, emotionally draining fight that can be Endometriosis.
Now I say "family" but this dynamic can come in all shapes and forms. You don't need to be blood related to be family.

Family to me are the people who love you unconditionally but will put you up on your bull without qualms. They are the ones who will comfort you and laugh wildly with you at inappropriate things. They never judge you, but accept you for who you are and you likewise them.

For me, my family are the ones who I can be 100% open with. I'm not afraid of who I am with them. My illness is not a seen as a weakness but when I have bad days there us no guilt there. I guess it's acceptance of who I am, entirely. My quirky sense of humour, shyness, choice language and intense passion for Rugby are all parts that join up to make me the person I am and to not have to answer for that is to feel safe and wanted.

It makes going through this battle with my body more bearable. When I feel as if the pain will never end and like pieces of me are literally being torn apart. When I'm burning up or passing out or my legs refuse to hold me anymore because all of me energy is focused on getting past this, getting through and for me avoiding the hospital because I am sick and tired of the "routine", knowing I have the love and understanding of my family, my supporters, the people I would trust with my life really does make all the difference for me.

Even if you only have one person that you feel this way about. It's one person who completely understands you and accepts you for you and that is priceless.

Enjoy the good times.

I'm writing this post feeling ecstatic as Ireland have just won the Six Nations Championship Rugby.

It was a close game, fantastic rugby and with all three final matches on over the one day quite a rollercoaster ride of emotions. I have the pleasure of sharing my passion for Rugby with my Mum and I wasn't in pain yesterday so it was fantastic to be able to enjoy something as simple as that. Although it was edge of the seat, on our feet screaming at the end, clapping and hugging each other like we'd just won a war. It was great to have this memory and know that my Endo for once had no part in the day. It's just a lovely, positive day to remember. It's also pretty cool that it fell on the weekend of St. Patrick's Day. Another reason to wear the green and be proud to be Irish.

At the moment I am doing well pain wise. I have a few niggles but I'm holding my own. I do feel very drained and my shoulders are heavy but I like to keep positive and enjoy these moments as much as I can. Endo is pretty much always going to be there whether it's right in your face screaming for attention or its in the background taunting you, waiting to make its move. We need to stay mentally strong when fighting this illness. I know there are days, weeks even months where we will feel it will never end but it is truly amazing what your mindframe can do to keep you fighting fit. I don't mean to sound preachy in the slightest. It's just something I've figured out over the years. Our bodies are built to withstand an awful lot and I for one would rather fight till the final whistle than put ny head down and admit defeat.

Love to my Endo Sister's, my family and friends XxxxX

Million Women March for Endometriosis 2014

It's finally here. The 13th if March 2014, the day we end the silence and begin awareness the way the world views Endometriosis.

My wish is that in years to come we will look back upon this day and the Global events that were held and we will ve proud that we were part of this movement, that we spoke up and educated people about thus illness. Because for far too long it has been taboo to speak of gynaecological issues and too many women, approximately 176 million are affected by Endo worldwide.

So today I wish my Endo Sister's and Warriors, their families and supporters the best of luck. Whether you are in D.C today, virtually marching or hosting your own event be proud of yourself. Because you are helping to make a difference.Tweet, Facebook it, share, get it trending. You know what to do guys.

I will be going on my mini March in Dublin City Centre this evening around 20:00 p.m. Do I will let you s know how it goes, hopefully it won't rain and I'll post photo's of us in our 2014 t-shirts which we got printed to  raise funds for the Endometriosis Association of Ireland and of course to raise awareness.
The T-shirts are available to buy and we will ship worldwide.

March eve (Thoughts for the day)

So it's the day before my first ever "March for Endometriosis" march and of course my Endo decides to makes it's presence known.
(I wouldn't mind but it kind of gave me a few hours off yesterday. I was able to go out and had a very enjoyable evening with a lovely gentlemen, a story for another time perhaps )

Anyway, I've had quite a bit of pain on my left ovary for some time now but over the last two weeks I seem to have a lot of episodes with cysts "popping". My legs literally turn to jelly and at times I have passed out from the pain. Today however I kept myself aware. I did not faint. But I am in quote a lot of pain. It's the really frustrating part of this illness. That you can make all the plans you want but in the end if something happens physically there's not a lot you can do. It can make you feel helpless at times but this is when I believe we need to have a positive attitude. I know that this pain is only temporary. I know that it will pass and I know that I will have many more good days ahead. It's tough sometimes when you feel like you ate letting people down because your body is letting you down but as my very wise Sister said to me "It's not like you deliberately popped a cyst". She can put things into perspective for me when I get anxious and worry to much of the effect I'm having on my family.

My family are just so so supportive it cannot possibly be described effectively. My Mum even has offered to March for me if I'm unable to go tomorrow. Now there's no way in hell I'm missing my own event but it's the unconditional love that comes at no cost that just overwhelms me. Of course like any family we nit pick and debate even sometimes row but the bond between the three of us is something that a lot of people cannot understand but I have found so many are curious about it.

It's not even really an Endo issue because, thankfully my Sister has not been diagnosed although we do keep a watchful eye on her for any symptoms. I feel we have been together in past lives and just this time our dynamic us Mother, Sisters and Daughters but we also have the capability of talking to each other as best friends and confidants which is invaluable when you need to discuss your health mental or physical.

I just wanted to share this because on days like today it makes me truly appreciate who I have in my life and it also makes me realise why I've kept them in my life and let others go.

Wild horses won't keep me from going tomorrow.

Love to my Endo Sister's and Warriors XxxX

I love this because I was and still am to a degree that girl. :-)