Let's sort out some of the worries that we may come across while dealing with this chronic pain from an invisible illness that still a lot of people do not understand.
Chronic pain can kill you. No, but it can have a major impact on your quality of life. Seek help before the despair sets in. Talk to a friend, your Doctor or a counsellor. Certain situations may prompt suicidal feelings if the pain becomes unbearable. Don't let it go this far. Take your pain seriously.
Dwelling on pain won't make it worse than it already is. The psychological suffering that comes with physical pain can certainly make you feel miserable. Dwelling on the pain in your mind can help emphasize it.
Note that although we may look healthy a recent study of the US Census Bureau showed that approximately 96% of people who live with an illness have an illness that is regarded as invisible.
Depression is 15-20% higher for the chronically ill than the average person. (Rifkin,A)
Anywhere from 30-50% of women with Endo experience infertility. It is claimed to be one of the top three causes of infertility. One of the most treatable yet the least treated. (American Society for Reproductive Medicine)
The lack of visibility to this illness can be both a blessing and a curse. Because there is no way for people to know when we are in pain we don't get offered seats on the tram or the bus, to gain that little bit of respite. Yet we don't have to face the prejudices that many people with visible illness' or disabilities face.
It's difficult for us to ask for help. Because we've become so good at hiding our pain,wearing that mask asking for help can seem like failure. But everyone needs a hand once in a while. It's ok to say you're having a bad day.
Endometriosis wears us out! We get so sick and tired of it that we're sure others are sick and tired of it too. We just want to withdraw from the world for a while. Verbalising this comes easier to some than others. Practice it so you don't wound those who are close to you. They will understand that you need some time. Just don't stop communicating with people. They will wonder why you've become so isolated and feel as though you are cutting them out of your life. In future when you feel like you need to withdraw tell at least one other person but don't forget to resurfuace.
Gentle well timed "education" can help your loved ones, spouses, partner etc to deal with this life-changing illness.
Be honest with your family and friends. Tell them what you can and can't do. Maybe you can't do that 4 hour shopping marathon but one hour on a good day is better than you cancelling all together.
Be aware that there are going to be people along the way who will question your limitations and just not be able to understand what you're going through. If you have acquaintances who undermine your self image, your health and general well-being it may be time to re-evaluate your relationship with these people. You need to protect yourself.
Look after your mental health. It's every bit as important as your physical health and can have a major impact on how you view situations.
Be good to yourself. Relax, learn yoga, meditation, tai chi perhaps or even simple breathing excercises. These can all help to improve your mood and indeed aid you in your anxious times.
XxxX
