Last night I was on the phone with a person I've only recently to get to know. So when he asked what it is that I'm doing with all of this Campaign-ing I got the usual response upon mentioning Endometriosis. "Endo-what?" I then had to think, what do I say to him? I don t know him that well. So I went with what Endo is and how it affects woman, tennagers and young girls allike. Explained that 1 in 10 Women will get it but many many women are walking around undiagnosed excepting that pain as a "normal" part of their lives.
It got me thinking though. Explaining Endo to someone for the first time can be a bit of a challenge depending on who they are to you (your best friend, family member, co-worker, new boy/girlfriend or even an acquaintance) I mean in the level of depth you need to get, just how personal should you get. Well I would always say go with your gut and only what you're comfortable divulging about yourself.
Being well informed yourself means you can well-inform others about this "invisible illness".
You can find helpful information here;
http://endometriosis.org/resources/articles/telling-others-about-endometriosis/
They have some really good ways of putting the conversation together. Just have a look.
I think it's handy to stick to the basics first and then go from there, because no two people are the same so no two cases of Endometriosis are going to be the same. That's probably one of the first things I would go with. You don't want to overwhelm people statistics at the start. Reel them in slowly, haha I jest!
1 in 10 Women have Endometriosis and yet it's not spoken about nearly enough. This year we put an end to the silence!
Stay strong my Endo Sisters.
XXXXXX (Coco)
Diagnosed with Endometriosis via laparoscopy in 2003 and Adenomyosis in 2015. This is my journey with chronic, invisible illnesses. "When all you know is pain you don't know that that is not normal." Susan Sarandon "You just have to tell somebody else. You have to take whatever stigma people think that is there. Here’s a disease you don’t know about and YOU NEED TO KNOW about it. It’s that simple. It’s not rocket science." Whoopi Goldberg
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