#1 after Primolut (Warning, bad Endo face)

I'm glad I made the most of my painfree time. Because here comes the flare up and the pain.

So I've just started my first period since coming off Primolut. It was 27 days, not bad for me. I'll take that all day but it's still early days yet. The first day which was the 19th wasn't too bad pain wise. I was in pain but I still manage to leave the apartment and spend a lovely afternoon with my Mum and Sister. That evening though I began to feel very uncomfortable,  too hot, legs were cramping and I knew I needed to get home.

The night of the 19th was horrible. The pain kept me awake. It felt like both ovaries were being pulled, stretched and twisted. The bleeding as usual is heavy, a lot of black clots which sometimes are painful to pass. I was exhausted yesterday. Literally had to crawl to the bathroom I was in that much pain. What worries me is the painkillers I am on aren't doing anything. I'm not getting any relief this time. I tried having a bath, it just irritated me more. Tried breathing exercises for the waves of muscle contractions and this was somewhat helpful. It helped to focus on my breathing to get me through those intense bouts. Like a ripple crossing my pelvis, the contractions come and go but are so extreme they have made me collapse and cry out with pain.

I also tried meditating, just clearing my mind and using some relaxation techniques I have learned. It was like being interrupted by a demanding toddler. The pain wants my attention all of the time.

I'm thinking I may try the Castor Oil Packs. In this weather keeping a heat pad on its so difficult. You run the risk of dehydration if you're not careful :-) Plus with the hot water bottle I accidentally burned my leg and it blistered. Don't want blisters on my stomach.

The boyfriend keeps telling me basically how he has no faith in the treatment here in Ireland and believes the only way for me to find relief is through surgery. He wishes strongly that I would visit his homeland and see Doctors there.

I'm not sure. I've reached my limit with Doctors to be honest. Treatments that haven't worked and now feeling like my only option is progesterone or nothing.

I'll look for an alternative thanks.

Hope you ladies are all hanging in there.
Love

XxxX

Check up - left Ovarian Cyst

After many weeks of trying to deny that everything's been ok with regard to my left ovary I finally gave in and went to see my Doctor on Monday. I've been having severe pelvic pain, radiating from my left ovary outwards. My lower back has been especially achy, my left shoulder is like a brick and the pressure I've been feeling in my pelvic area has been at times quite intense.

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I am really lucky to have such a good rapport with my Doctor. He is very understanding and thorough, doesn't take any BS and I would like to think is very upfront with me. I explained my symptoms and after some routine tests and a pelvic exam he concluded that I most likely have a large cyst on my left ovary. While I had suspected that this was the case I felt very relieved to have the diagnosis. He prescribed me painkillers and antibiotics three times a day for a week.

I'm under strict orders not to do any heavy lifting, over exerting or gymnastics

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 (there goes my big plans for the week :-) ) If the cyst doesn't calm down with the treatment then he wants me to go to hospital. I've has many cysts burst in the past and I am prone to fluid-filled ones so I'm not very eager to go running to A&E. Fingers crossed though everything works out well. I've had some pain today alright but so far I don't feel like anything is about to pop.

While I was with my Doc I also broached the subject of "coming off" my Primolut N as my migraines are increasing again. In his opinion, he thinks I should stay on it for the moment as the weigh up between the haemorrhaging I experience and the migraines are not really a balanced choice.

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I know he has a point and it's true I've been good in getting off the rest of the hormone treatments I was on so of course it's best to suffer the migraines instead of the prolonged bleeding, anaemia and crazy hell that would occur should I cease the progesterone treatment.

I just thought I'd chance my arm, see if I was "doing better". It's been frustrating me really badly of late how much this chronic condition affects my day to day life. Some days just finding the willpower to get out of bed is a monumental task. When my pain is what I would call "bad" I can't concentrate on anything, I'm extremly irritable and really you do approach at your own risk.

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I know I talk a lot about staying positive and I'll stick to that as I frmly believe it can and does help in the long run to cope with this illness, or most really I suppose. I never said you couldn't have a bad day, week or feel irritated at times.

It's all about getting up each day and carrying on, doing our best, making good choices and being kind to ourselves.

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Love to my Endo Sisters.

Andie  

XxxX