Thursday, March 15, 2018

Continuing on with the Endo Photo Challenge for 2018

I haven't been able to update the blog because I've been going through a horrible flare up with my Endo/Adeno and other chronic issues. I've just about managed not to fall too far behind by updating my Instagram (thank the gods for smartphones and apps)

So here are a couple of recent topics we've covered with regard to Endometriosis Awareness.

Day 11 was about the myths we've all heard about Endo.
#theendophotochallenge2018

 Myths that I've come across where mainly from Doctors in my case, about Endometriosis.

Most commonly I've been told,

Pregnancy will cure you, surgery will cure you, a hysterectomy will cure you.

Side bar; There is no cure for Endometriosis

While some Women's symptoms ease off whilst pregnant it doesn't mean they're cured, same goes for surgery. You might feel relief for a time but then find your symptoms returning.

Finally a hysterectomy does not cure Endo. This has to be one of the biggest myths floating around.

Do your own research and get second opinions if necessary. Don't drastically change your life by bringing a child into the world purely for the sake of chasing a cure.
Don't have a hysterectomy or radical surgery if you're trying to preserve your fertility, if the Endo is outside the womb because you won't be cured.
You MAY find relief but you MAY NOT.

It's a gamble that we shouldn't have to take with our bodies.




I also have psoriasis, bruising for no reason or extremely easily bruised which I've been told is from Anaemia. I have been a chronic insomniac since around age 20, so 12 years with that and believe me I've tried and continue to try everything to crack it, from alternative remedies like acupuncture, reflexology, herbs to prescription medication. Whoever coined the term "painsomnia" had it totally right.  I also suffer from shoulder and neck pain. 






Day 14 & 15 of #theendophotochallenge2018

Positive side to Endo & what Endo has taught me. 
The positive side;
I would have to go with making me stronger as a person. I have learned and listened to my body all along this road. But it took a while for me to actually question my Dr. 's to ask for second opinions and not take their sometimes dismissive way of speaking to me.

I've left my home country Ireland ๐Ÿ‡ฎ๐Ÿ‡ช and gone to ๐Ÿ‡ซ๐Ÿ‡ท to have cutting edge surgery to try reduce my pain and symptoms and I flew home solo after only a few days recovery. That was the strongest thing regarding surgery I've ever had to do alone but I got through it.

I'll keep fighting for myself and spreading as much awareness about this awful invisible illness as I can.

What Endo taught me;

Being diagnosed also taught me who my true friends where as a lot walked away because I would be too weak or have to cancel plans and that again opened my eyes and has made me who I am today.

I love the ones who stayed, I love my Mum so much for being there the whole time, fighting for me since age 11 because she had gone through it and knew the symptoms. She was told that she was wishing it on me, that I just had heavy periods and very bad pain, even when I would miss school every month because of my period and collapse our G.P still wouldn't listen or give a referral. She daughter hard until we got that referral and through a diagnostic Laparoscopy it was finally discovered that I had severe Stage IV Endometriosis. It took us 7 years to get that diagnosis. 7 years where it went untreated. That woman will forever be my hero. She stood up for me at a time I couldn't and has been with me through every treatment and surgery bar one.

She'll just say that's a Mum's job but she deserves the recognition for it considering she has chronic issues of her own she deals with every single day. 

So listen to your body, keep a journal and don't ever be afraid to speak up for yourself and ask questions, do research. It's your body. You do have a say. 

(Went slightly off topic there ๐Ÿ™ƒ)  

For more follow me Instagram and Facebook @isthereanendtoendo and on Instagram @lifeofandiealessandra where I'm posting my challenge photos.




Tuesday, March 6, 2018

Day 6 of Endometriosis Awareness Month

Day 6 of #theendophotochallenge2018


Years with Endo.

I've been diagnosed through surgery with Stage IV Endometriosis for almost 15 years now.

However, I've been suffering for 23 years with strong symptoms and have been dismissed along the way, at one point the professionals had me believing that the pain was all "in my head".



Even after I was diagnosed people still didn't believe how badly I was suffering bar one and she knows who she is. She has stuck beside me through every treatment decision, fought hard for Doctors to take me seriously and ultimately get me my diagnosis.

She has been through every up and down with me, talking surgical and treatment options over with me time and time again to make sure that I could live with my choices as over the years the sacrifices have just gotten bigger and not necessarily for the best. But up or down, stormy or calm she's always been there when others have scoffed or simply walked away because my diagnosis was just "too much for them to handle".

You need a support system with this disease, wherever you can find it, but you need one nonetheless.

Stay positive and I'll see you tomorrow for the next challenge.

Andie

Monday, March 5, 2018

Day 5 of Endometriosis Awareness



Day 5 of #theendophotochallenge2018 on Instagram



Listed ๐Ÿ‘† are my medications/treatments to date (that I can recall) for the pat 18 years.

Let me tell you the struggle is all to real when you have an invisible illness.

People just don't see past you looking like a regular walking/talking being. They don't see the scars, the pain behind the masks we wear to try look "normal". No one sees the sacrifices we make along the way or allow us to grieve for the girls and women we used to be before Endo.

Well no more ๐ŸŽญ. This is our chance to spread awareness and shout/scream, let our 176 million voices be heard.

#endometriosisawareness #endoflare#endopain #fightlikeagirl #endoaware#ovulation #ovarypain #bowelresection#surgeries #painlevelhigh#1outof10doesntworkforme #1in10#176millionwomen #weneedacure#spoonie #chronicpain #chronicillness#invisibleillness #stageivendo #staystrong#positivethinking #mentalhealth#positivevibes #powerofpositivity #healing#respect #bekind #friendship

Day 4 of Endometriosis Awareness

Day 4 #theendophotochallenge2018 on Instagram
Diagnosis;

After seven years of suffering heavy periods, fainting spells and numerous days off from school I was finally diagnosed at age 18 through surgery, laporscopacally, with #stageivendo.

Even though I have a very strong family history of Endometriosis my G.P kept dismissing even the idea of me having it.

I started showing symptoms at age 11. Don't let this happen to your daughter /sister/significant other/family members.

#endometriosisawareness #endoaware#1in10 #176millionwomen #weneedacure#spoonie #chronicpain #chronicillness#invisibleillness #endopain#endosymptoms #endodiagnosis
#chroniclife #endolife

Day 3 of Endometriosis Awareness Month

  • Day 3 of #theendophotochallenge2018

    Symptoms;


    Severe Pain
    Anxiety
    Sciatica 
    Constipation
    Diarrhoea
    Vomiting
    Collapsing/Dizziness
    Hypertension 
    Migraines 
    Scar tissue pulling/pain/itching
    Deep vaginal pain
    Blood clots/Heavy bleeding 
    Infertility
    Irregular cycle
    Aneamia(low iron)
    Contraction pain (also related to Adenomyosis) 
    Pain in/on;

    Pelvis, back, lower back, ovaries, shoulders, ribs, intercostal, behind eyes from migraines, leg cramps, sciatica, bowels, uterine contractions, bladder pain, cysts rupturing on ovaries, passing clots, pain during sex/bowel movements/urination.

    #endometriosisawareness #endoflare#endopain #fightlikeagirl #endoaware#ovulation #ovarypain #bowelresection#surgeries #painlevelhigh#1outof10doesntworkforme #1in10#176millionwomen #weneedacure#spoonie #chronicpain #chronicillness#invisibleillness #stageivendo #staystrong#positivethinking #mentalhealth#positivevibes #powerofpositivity #healing#respect #bekind #friendship#mentalhealthawareness

Friday, March 2, 2018

What is Endometriosis? (March 2018)







Stand up for yourself. You have 176 million Sister's with you in this. Don't allow anyone to take your control away or kick out at your comfort zone. 
If you can't do something right now because of this invisible illness then tell the person/people who are expecting too much from you.

Knowledge is our best weapon. Ignorance breeds intolerance to our situation.

I'm grateful to have my person, the one I can talk to about my limitations and she doesn't guilt trip me because she two went through it. But touch wood she was able to carry two pregnancies full term before having a hysterectomy at 32. @firequeen7 
I've had to resort to an endometrial ablation, Dec 2017,of my uterus to try control the clots and haemorrhaging. This now means I will never carry my own child. 
Without the unconditional support for the past 21 almost 22 years  I honestly don't know where I'd be. I've gone through some really dark times due to this illness and as we know there is no cure.

We need to do our part now matter how big or small in order to educate others as much as we can about Endo & Adeno, PCOS, FBD, Fibroids, cysts... Keep a diary and if something looks out of the ordinary such as bleeding longer than a week please contact your primary health care.

Apologies for the late rant. It's been a tough few months. 
Big hugs and love you you guys. If anyone needs/wants to discuss this further DM me please.
#chronicillness #chronicpain
#endometriosisawareness #endoflare #endopain #fightlikeagirl #endoaware #adenomyosis #Adenoawareness #surgery #ablation #laparotomy #excision #decapeptyl #laparoscopy #bowelresection #hysterectomyforadeno #anxiety
#choices #endosucks #bitemeendo #fuckthispain #constantpainisnotnirmal

#endomarch2018

Are you participating in your city? My country ๐Ÿ‡ฎ๐Ÿ‡ช doesn't march for Endo which is disappointing. Although to my knowledge the national charity EAI have turned up to the women's mini marathon and wear their shirts to promote themselves/endo. 
Research shows 1 in 10 women have some form of Endo. I don't have stats for Adeno. That 176 million women worldwide and no cure. Shocking, in 2018 to still be fighting this.

#1in10 #176millionwomen #fightlikeagirl๐Ÿ’ช

Day 1 & 2 of awareness month

I am 1 in 10 women #1in10 #176millionwomen




March 01st 2018 is the start of #endometriosisawarenessmonth and the #theendophotochallenge2018 to raise awareness.

I am 1 in 10 women who have this invisible disease. I am also 1 out of 176 million globally. I've been living with my diagnosis since age 18 but my symptoms started right around 11 years old.

My Mum had it too as did all of her Sister's and my Maternal Grandmother. Nearly all had hysterectomies based on Doctors advice back then that it would "cure" them.
I have Stage IV Endometriosis, which means it has spread beyond my womb and sticks to other organs, in my case my bowel, bladder and ovaries.

It effects every aspect of my daily life. Just because I look fine doesn't mean that I am.
Spread love, hope and support please. ๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’› I also have Adenomyosis which is Endo that grows in the muscular walls of the womb. The only way to rid my body of this is a hysterectomy.
๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ However a hysterectomy is NOT a cure for Endometriosis. Neither is PREGNANCY.

THERE IS NO CURE!
#endochallenge #endoaware #endolife #awareness #1in10 #176millionwomen #marchisendoawarenessmonth #notjustabadperiod #EducateYourself #spreadawareness #infertility #ovulation #stageivendo #chronicillness #invisibleillness #endopain #endosymptoms #supporteachother #dontbeignorant #askmeaboutmyendo






Day 2 of #theendophotochallenge2018





#1in10 #theendophotochallenge2018 ๐Ÿ‘† Barely touches on how Endometriosis affects my daily life.
Most of the time I am restricted to my house because of the daily pain. The pain meds make me drowsy and sleeping when I can, as I'm a chronic insomniac, is the only way to escape the pain for a short while.

Endo is not just confined to the womb. It can and does grow outside, sticking to other organs like the appendix, gallbladder, bowels, bladder and sometimes the lungs.

It can cause Infertility which can be and is heartbreaking. It forces you to cancel plans because there is no predicting the flares and honestly I've lost count of the friends I've lost along the way due to my condition. Even certain members of my family never understood what I was going through. One actually thought that I was getting more attention when I was diagnosed and got jealous. It can destroy relationships. There is no end to the suffering.
The illness has been compared by my specialist in August 2017 to Cancer. Others have compared the pain to labour. We need more understanding about our invisible condition. If you said that you had Cancer you'd get more help and support than when you tell people you have Endo and that comes from a lack of knowledge.
We need to shout and scream so young girls can be diagnosed as quickly as possible. We need science to find a treatment that works without throwing us into a false menopause or raising our blood pressure, giving us searing migraines, leg cramps, weight gain, mood swings, black outs etc.

Please educate yourself and if you suspect your daughter, Sister cousin, girlfriend partner or wife may have it get to your G.P and get the ball rolling.

Ladies, keeping a diary of your cycles proves very useful when going for your consultations.

There are apps out now that make it a lot easier to track your period, mark down how many days, how long or short your cycle is and how bad your pain levels are etc. You'll find them for free in your app store. Android or IPhone.
Spread awareness, hope and support those who need it. ๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›