Having woken up this morning with what I generally call a "bad Endo day" I thought to myself; why don't you share some coping tips/tricks you use to make the day slightly better?
So here they are.
I generally find that an electric heating pad works for helping relax those tight muscles and keep the bad spasms away. It helps if you can do a breathing technique to control the breath so you don't tense up when a spasm does occur. I have one similar to this, it has three setting switches off automatically after 90 mins so as to avoid over-heating and I haven't had any burns like some people get from them. It's normally a good idea to keep the pad over clothing such as a light t-shirt or pyjama top though as having it too close to the skin can irritate it.
Now just because Endometriosis is associated with the pelvic area does not mean that women don't experience pain in other parts of the body. For example, I personally experience lower back pain, shoulder pain and leg cramping that comes from my Endo.
A good tip I've used for leg cramping is to elevate them normally with a few pillows or cushions and try get the legs up slightly higher than the heart. This aids blood flow and helps reduce the cramping. Massage is also very beneficial for muscular tension but you should always check with your G.P or medical professional as some people are contra-indicated for a number of different reasons. But, if you are able to have massage then you may find it to be very helpful with easing tension and creating a state of relaxation and well-being.
If like me, you are open to alternative medicine or herbal remedies the following have proven useful for coping with Endometriosis;
Acupuncture is part of Traditional Chinese Medicine. Combined with traditional herbal medicine many women have gotten relief from this treatment. Acumpuncture practitioners insert sterile needles into specific parts of the body to treat a number of disorders. The specific points in the body that are used vary from person to person but common points used in the treatment of Endometriosis include the ears, wrists, feet, legs, back and abdomen. The needles are usually left in for twenty to forty-five minutes. Prescribed Chinese herbal remedies are individual to each person depending on your level of pain/discomfort and where you are being physically affected.
Aromatherapy has been around for thousands of years. When incorporated with massage it helps ease muscle tension. A chronic condition causes stress, anxiety and with any long-term pain muscles tense up. Some good essential oils used to help aid relaxation include Lavender, Geranium, Patchouli, Ylang Ylang, Clary Sage and Orange.
T.E.N.S ( Transcutaneous Electrical Nerve Stimulation) is becoming more common amongst chronic pain sufferers. It is a drug-free method of pain relief that has been known to help in a wide variety of muscle and joint ailments.
You can have a T.E.N.S session under the supervision of a health care provider although many people are buying their own equipment for use at home as this method has proved to be safe, generally easy to use and non-invasive. Many pharmacies stock these machines along with some well-known catalogue retailers.
T.E.N.S machines start from around €30.00 which isn't that bad when you think of the amount you probably spend on painkillers. Before you use a T.E.N.S machine check with your G.P to make sure it is suitable for you. People will pacemakers for example cannot use these machines so it's always best to check first before beginning any new therapy or treatment.
Some studies have shown that Calendula oil pictured above) has proven to be effective in relieving pain associated with Endometriosis. The oil is applied topically and has been used for centuries as a herbal remedy. Well known for it's analgesic properties, Calendula is the ideal remedy for pelvic pain and personally I know it to work, soothe the skin and generally give a sense of well-being.
All of the above do help you to cope with the pain but you also need emotional support when dealing with any kind of chronic condition. You're not really going to wake up one day and the Endo will have disappeared like a thief in the night but you can learn to live with it and have a quality of life. The big thing I find is to stay positive throughout, whether you're undergoing treatment, surgery or having a really bad day. Find something positive about your life and focus on that. It really does help.
Other alternative treatments include Herbalism, Naturopathy, Homeopathy, and Chinese Herbal Medicine.
Before you begin a treatment check with a medical professional. Seek out an accredited practitioner, massage therapist or ask your G.P for his/her recommendations.
Diagnosed with Endometriosis via laparoscopy in 2003 and Adenomyosis in 2015. This is my journey with chronic, invisible illnesses. "When all you know is pain you don't know that that is not normal." Susan Sarandon "You just have to tell somebody else. You have to take whatever stigma people think that is there. Here’s a disease you don’t know about and YOU NEED TO KNOW about it. It’s that simple. It’s not rocket science." Whoopi Goldberg
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About Me
Monday, June 25, 2012
Wednesday, June 20, 2012
Now we wait
Monday just gone we had our OBGYN appointment to follow up with how I got on with the Clomid etc.
Luckily I actually got to see a Doctor I know from a previous appointment so there wasn't the usual nonsense of explaining every single detail from the past eight years or so.
We discussed the fact that I am not willing at the minute to continue with the Clomid due to the side effects. For me personally it has caused an increase in my anxiety and panic attacks which is in no way going to aid with the TTC so moving one for now.
The Doc performed an internal exam and concluded that the existing cyst on my right ovary may have grown since the scan in February so the scan will need to be repeated to see if indeed it has grown, if there's another cyst or if it's actually an Endo growth. Fun times!
I got the appointment this morning and due to the back log in the Ultrasound Dept. I won't be getting that scan until 05th November 2012. It does seem like a long time to wait especially as my right and left "sides" (ovaries) are causing a lot of pelvic pain which only began with the second round of Clomid but which has stayed even though I'm nearly two cycles off the treatment.
In the meantime however if things get really bad I've to do the usual. For me that means wait and wait and wait and wait a little bit more until I absolutely physically can't stand the pain any more and then I might just present at A and E. It sounds very careless of me I realise to wait so long when things get really bad. But, I've never been in a situation where I have not been admitted to hospital after presenting at the Emergency Dept. Now, this is more than likely due to the fact that I do wait so very long before giving in and going into the hospital but I generally think that the pain or discomfort will just pass and due to the nature of the chronic pain situation I need to be pretty bad to present as I have quite a high pain tolerance.
Anyway, will I learn my lesson? Perhaps. Or maybe I'll continue to stick it out as long as I can. After all "giving in" to this disease doesn't make me feel any better so I'll fight it tooth and nail if needs be.
A new circle has begun for us. We are still very positive and truly believe that when the times right things will happen. For now, we wait and see.
As a wise woman once told me "What's for you won't pass you".
Did you know?
Ok so by now you would assume that we'd all be a bit more aware of what causes Endo but here are some facts you may not have considered with your symptoms.
Symptoms of endometriosis can include:
- Very painful menstrual cramps; pain may get worse over time
- Chronic pain in the lower back and pelvis
- Pain during or after sex
- Intestinal pain
- Painful bowel movements or painful urination during menstrual periods
- Spotting or bleeding between menstrual periods
- Infertility or not being able to get pregnant
- Fatigue
- Diarrhea, constipation, bloating, or nausea, especially during menstrual periods
Recent research shows a link between other health problems in women with endometriosis and their families. Some of these include:
- Allergies, asthma, and chemical sensitivities
- Autoimmune diseases, in which the body’s system that fights illness attacks itself instead. These can includehypothyroidism, multiple sclerosis, and lupus.
- Chronic fatigue syndrome (CFS) and fibromyalgia
- Being more likely to get infections and mononucleosis (ma-no-nu-klee-OH-suhs)
- Mitral valve prolapse, a condition in which one of the heart's valves does not close as tightly as normal
- Frequent yeast infections
- Certain cancers, such as ovarian, breast, endocrine, kidney, thyroid, brain, and colon cancers, and melanoma and non-Hodgkin’s lymphoma
You might be more likely to get endometriosis if you have:
- Never had children
- Menstrual periods that last more than seven days
- Short menstrual cycles (27 days or less)
- A family member (mother, aunt, sister) with endometriosis
- A health problem that prevents normal passage of menstrual blood flow
- Damage to cells in the pelvis from an infection
- These facts have been brought to you today by (Woman's Health Government Publications)
So here's a quick card if you will listing the possible symptoms.
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